Fibrous dysplasia is a chronic (long-term) bone disease where a portion of bone develops abnormally. Fibrous (scar-like) tissue takes the place of normal bone. As your bone grows, this softer fibrous tissue expands. As it does so, your bone is weakened.
Fibrous dysplasia can cause your affected bone to become deformed. This makes it more likely to fracture (break).
Fibrous dysplasia begins before you are born. However, it may not be discovered until childhood, adolescence or adulthood.
Fibrous dysplasia is responsible for about 7% of all benign bone tumors. Although any bone in your body may be affected, this disease occurs most frequently in your skull, upper arm bone, pelvis, thighbone and shinbone.
Most of the time fibrous dysplasia only affects one bone. When it does so, it is referred to as monostotic fibrous dysplasia. Polystotic fibrous dysplasia is when this disease affects two or more of your bones. This can be two bones in the same limb or several bones throughout your skeleton.
Fibrous dysplasia affects men and women, equally. It also affects all races about the same.
Fibrous dysplasia is caused by a gene defect (mutation) that affects the cells that produce bone. However, no one knows what causes this gene defect. It is known that this disease is not inherited or passed on to the children of affected parents. There is also no known environmental or dietary cause of fibrous dysplasia.
Your doctor may suspect fibrous dysplasia from the signs and symptoms that you are experiencing. If so, your doctor will probably do a physical exam and want X-rays of your affected bones. In order to confirm a diagnosis of fibrous dysplasia, your doctor may want you to have additional diagnostic tests and procedures. Some of these are:
- Bone scan
- Bone biopsy
- MRI (magnetic resonance imaging) scan
- CT (computerized tomography) scan.
Fibrous dysplasia may cause little or no signs and symptoms. However, if the disease is severe, you may experience:
- Bone deformities
- Bone pain that increases with activity and lessens with rest
- Fractures (breaks)
- Problems with walking
- Bone sores (lesions)
- Endocrine gland difficulties
- Pigmentation (unusual skin color).
You or a loved one may have fibrous dysplasia. Fibrous dysplasia and/or complications that have resulted from or other debilitating conditions that you may have along with this disease may be the cause of your disability and need for financial help.
You or your loved one may have applied for the financial assistance that you need from the Social Security Administration by applying for Social Security disability benefits or disability benefits because of the disability caused by fibrous dysplasia and/or complications that have resulted from or other debilitating conditions that you may have along with this disease. Were you or your loved one denied by the Social Security Administration?
If you or your loved one reapplies or appeals the denial, remember this. People who are represented by a disability attorney like the one you will find at Social Security Home are approved more often than people who do not have a disability lawyer on their side.